We got a call on New Year's Eve 3 hours after we left, says she took a turn for the worst. She ended up D-Sating and turned blue while her breathing got really heavy and fast (140-160 bpm) So they took an X-Ray and it showed she had massive Pulmonary Edema. So they moved her back into the critical NICU section (spot 5), were giving her more diuretic's and putting the nasal CPAP on her and if that doesn't work then they'll incubate her.
When I got there the CPAP seemed to be working and is still working today but they do have her in the incubator with the top up just incase. They also called her cardiologists and they are having a meeting with all the cardiologists in North America on Tuesday (Tomorrow) for her (U.S and Canadian top surgeons) and then HER Cardiologist will be coming down on Thursday so do another echo and hopefully be able to figure this out.
They aren't thinking her heart conditions are causing this as her pulmonary veins are only slightly narrowed and the PDA was nearly closed and not causing any effect on the shelf in her aorta, however they have nothing else to blame for her symptoms as all her blood tests and scans have come back great even her gases. The Dr.'s said that they really don't know what's going on with her that all they can do is make her comfortable until they can figure it out, and that hopefully they can figure it out soon, because she's not getting better she's getting worse and has been getting worse since she was born :(
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