They stopped Erica's feedings this morning at 2:00 am. She was quiet for the most part. Sleeping restlessly with a blanket tented over her head until 1:00 pm (1 1/2 hrs sooner then we expected her to go down at) They got her all set and the RT (Respiratory Therapist) started to breath for her and we went down to the MRI room.
Erica was quite ticked off, to the point where her heart rate shot up to 180-190+ bpm, and she turned mottled (white and blotchy) with a red face, she was crying so hard (silently as she had the tube straight through her vocal cords to her lungs) that she had tears. They wheeled her into a little room and I was able to be with her, while dad waited in the Pediatric MRI waiting room just outside the big doors.
Once we got to her room the anesthesiologist came in to sedate and paralyze her for the MRA. They said sorry to her and told her that she wouldn't hate them for long. (I guess the med that paralyzes them stings/burns as it goes in. (of course she had to have the I.V. in her head) and the pain in her eye's was unbearable. She was out (white/mottled and very limp) in the matter of seconds.
The procedure ended up taking 2 hours as they had some issues with their ventilation for her (it had no PEEP) Then they had to give her more sedation and paralyzing med's as she was waking up during the procedure (of course it was 10 minutes until they would have had all they needed/wanted. So once we got back up stairs, she was placed in a warm blanket as she got very cold, and they started her I.V.'s back up, her med's, and started taking her blood pressure. Her heart rate was still at 180+ bpm and her blood pressure was extremely high (138/90+ with a mean of 101-115) they were maybe going to start giving med's, but they needed an arterial line in to measure her constant blood pressure and so they could draw repeated blood for blood work and gases. They tested her blood sugars and they came back high as well. They were thinking she was under massive stress, but they also couldn't rule out a reaction to the sedation and her heart in general.
Once she started to wake up her pressures and heart rate slowly declined ( It dropped however very slowly) Once she was more awake they were able to narrow her issues down to stress and sedation, as they did another echo to check her heart once they found out about her high pressures and it was fine and working the same as before with no closed ductus or more stenosis'ed veins.
She finally calmed down to a more tolerated level around 10:00pm
It was a very exhausting day for all!
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